Does EDS affect facial features?

People who have vascular Ehlers-Danlos syndrome often share distinctive facial features of a thin nose, thin upper lip, small earlobes and prominent eyes. They also have thin, translucent skin that bruises very easily. In fair-skinned people, the underlying blood vessels are very visible through the skin.

Can you get Botox with Ehlers-Danlos syndrome?

Botulinum toxin may break such compensation, leading to head and neck instability, worsening of pain and even serious injuries. Extra caution should be exercised for Botulinum toxin injection in patients with hypermobility EDS. Muscles involving head and neck stabilization should be avoided.

Do people with EDS wrinkle less?

Less wrinkles Due to the collagen in the skin being extra stretchy, many EDS patients experience a lack of wrinkles as they age. This collagen may help EDS patients look younger and can also cause skin to feel extremely soft. Doctor’s even describe the skin as “velvet-soft”.

Do people with EDS have saggy skin?

The dermatosparaxis type of the disorder is characterized by loose skin that sags and wrinkles, and extra (redundant) folds of skin may be present. Bleeding problems are common in the vascular type of Ehlers-Danlos syndrome and are caused by unpredictable tearing (rupture) of blood vessels and organs.

Can you have plastic surgery with EDS?

Aesthetic or cosmetic surgeries can correct droopy eyelids common in EDS, particularly classical or vascular EDS. Patients also sometimes undergo a facelift to offset a deficiency of collagen support in the skin. Breast reduction may help reduce skin chafing or neck and shoulder pain due to heavy breasts.

Does EDS cause Crepey skin?

Disease at a Glance Common symptoms include soft, doughy skin that is extremely fragile; saggy, redundant skin, especially on the face; hernias; and mild to severe joint hypermobility. EDS, dermatosparaxis type is caused by changes in the ADAMTS2 gene and is inherited in an autosomal recessive manner.

Can you donate blood with Ehlers-Danlos?

Certain medications may delay your ability to donate blood….Medical Conditions Affecting Donation.

Medical Conditions	Eligibility
Ehlers Danlos Syndrome	Acceptable
Ehrlichiosis	Accept if asymptomatic and treatment completed

Does vitamin C help with Ehlers-Danlos?

Supplementation with vitamin C has also been shown to improve collagen synthesis/clinical status in some patients with Ehlers–Danlos syndrome [7] Based on the above data, a dose of 1500 mg/ day of vitamin C is proposed.

How does Ehlers-Danlos syndrome affect hair?

The defects of the collagen previously reported in EDS account for the increased extensibility of the skin (1, 2). It is possible that the altered skin structure results in increased pliability of the skin which may allow the hair follicles to expand.

Can EDS affect your nose?

About 50% of individuals with EDS have the ability to touch the tip of the nose with their tongue (Gorlin’s sign) – this is especially likely with classical and hypermobile EDS. The oral mucosa may be thin, easily tear and give rise to mouth ulcers (classical and hypermobile EDS).

Can people with EDS have liposuction?

Surgery is risky in EDS and should be a last resort. EDS patients have fragile skin and tissues that tear easily during surgical procedures, which can complicate suturing.

Does EDS cause droopy eyelids?

Redundant or drooping skin of the eyelid may be present due to eyelid laxity. Dry eyes are also very common in patients with EDS affecting 63% of patients. This may be due to impaired closure of the eyelids resulting in overexposure of the eyes to the environment.

What famous people have Ehlers-Danlos?

2019 brought much hope to the long-silent-suffering Ehlers Danlos Community when Lena Dunham, Jameela Jamil, and SIA revealed their EDS diagnoses.

Can taking collagen help with EDS?

Bottom Line: No established research or clinical experience has proven that collagen supplementation is helpful for persons with EDS! Theoretically, a diet adequate in glycine, proline, lysine, and vitamin C (or supplementation) would support collagen biosynthesis.

What are the facial features of Ehlers-Danlos syndrome?

People who have vascular Ehlers-Danlos syndrome often share distinctive facial features of a thin nose, thin upper lip, small earlobes and prominent eyes. They also have thin, translucent skin that bruises very easily. In fair-skinned people, the underlying blood vessels are very visible through the skin.

How does Ehlers Danlos affect the body?

Overview Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provide strength and elasticity to the underlying structures in your body.

What are the risks of Ehlers-Danlos syndrome (vascular type)?

Fragile skin may develop prominent scarring. People who have Ehlers-Danlos syndrome, vascular type, are at risk of often fatal ruptures of major blood vessels. Some organs, such as the uterus and intestines, also may rupture. Pregnancy can increase these risks.

How does Ehlers-Danlos syndrome affect stitches?

People who have Ehlers-Danlos syndrome usually have overly flexible joints and stretchy, fragile skin. This can become a problem if you have a wound that requires stitches, because the skin often isn’t strong enough to hold them. A more severe form of the disorder, called Ehlers-Danlos syndrome, vascular type,…